Additional file 1: of Model consent clauses for rare disease research

Nguyen, Minh; Goldblatt, Jack; Isasi, Rosario; Jagut, Marlene; Jonker, Anneliene; Kaufmann, Petra; Ouillade, Laetitia; Molnar-Gabor, Fruszina; Shabani, Mahsa; Sid, Eric; TassĂŠ, Anne; Wong-Rieger, Durhane; Knoppers, Bartha

doi:10.6084/m9.figshare.9210542.v1

12910_2019_390_MOESM1_ESM.docx (138.71 kB)

Additional file 1: of Model consent clauses for rare disease research

journal contribution

posted on 2019-08-02, 07:06 authored by Minh Nguyen, Jack Goldblatt, Rosario Isasi, Marlene Jagut, Anneliene Jonker, Petra Kaufmann, Laetitia Ouillade, Fruszina Molnar-Gabor, Mahsa Shabani, Eric Sid, Anne TassĂŠ, Durhane Wong-Rieger, Bartha Knoppers

MCC Report of the Model Consent Clauses Task Force Meeting (Paris, September 6â7, 2018). (DOCX 138 kb)

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Rare diseases Informed consent Research ethics Core consent elements Consent clauses

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Additional file 1: of Model consent clauses for rare disease research

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