Additional file 1 of Utilization of CoRDS registry to monitor quality of life in patients with VCP multisystem proteinopathy

Abdoalsadig, Eiman; Hamid, Merwa; Peck, Allison; Johar, Leepakshi; Kimonis, Virginia

doi:10.6084/m9.figshare.28792777.v1

Additional file 1 of Utilization of CoRDS registry to monitor quality of life in patients with VCP multisystem proteinopathy

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posted on 2025-04-15, 03:27 authored by Eiman Abdoalsadig, Merwa Hamid, Allison Peck, Leepakshi Johar, Virginia Kimonis

Supplementary Material 1: Figure 1. Demographics. (a) Age of diagnosis of participants with VCP disease, (b) Age of first symptom onset in VCP disease participants. Each slice represents a specific age range.

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VCP Inclusion body myopathy Paget’s disease of bone Frontotemporal dementia (IBMPFD)Amyotrophic lateral sclerosis (ALS)Multisystem proteinopathy Patient-reported outcome measures (PROMs)Quality of life (QOL)

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Additional file 1 of Utilization of CoRDS registry to monitor quality of life in patients with VCP multisystem proteinopathy

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