Additional file 8 of Improvements needed to support people living and working with a rare disease in Northern Ireland: current rare disease support perceived as inadequate

McMullan, Julie; Crowe, Ashleen L.; Bailie, Caitlin; Moore, Kerry; McMullan, Lauren S.; Shamandi, Nahid; McAneney, Helen; McKnight, Amy Jayne

doi:10.6084/m9.figshare.13212172.v1

13023_2020_1559_MOESM8_ESM.pdf (34.91 kB)

Additional file 8 of Improvements needed to support people living and working with a rare disease in Northern Ireland: current rare disease support perceived as inadequate

journal contribution

posted on 2020-11-10, 04:42 authored by Julie McMullan, Ashleen L. Crowe, Caitlin Bailie, Kerry Moore, Lauren S. McMullan, Nahid Shamandi, Helen McAneney, Amy Jayne McKnight

Additional file 8. Summary table of topics raised in the discussion.

Funding

Medical Research Council

History

Usage metrics

Keywords

Collaborative groups Communication Northern Ireland Online Rare disease Semi-structured interview Social media Support Survey

Licence

CC BY + CC0

Exports

RefWorks

BibTeX

Ref. manager

Endnote

DataCite

NLM

DC

Additional file 8 of Improvements needed to support people living and working with a rare disease in Northern Ireland: current rare disease support perceived as inadequate

Funding

Medical Research Council

History

Usage metrics

Categories

Keywords

Licence

Exports