Additional file 5 of Improvements needed to support people living and working with a rare disease in Northern Ireland: current rare disease support perceived as inadequate

McMullan, Julie; Crowe, Ashleen L.; Bailie, Caitlin; Moore, Kerry; McMullan, Lauren S.; Shamandi, Nahid; McAneney, Helen; McKnight, Amy Jayne

doi:10.6084/m9.figshare.13212163.v1

13023_2020_1559_MOESM5_ESM.pdf (133.64 kB)

Additional file 5 of Improvements needed to support people living and working with a rare disease in Northern Ireland: current rare disease support perceived as inadequate

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posted on 2020-11-10, 04:42 authored by Julie McMullan, Ashleen L. Crowe, Caitlin Bailie, Kerry Moore, Lauren S. McMullan, Nahid Shamandi, Helen McAneney, Amy Jayne McKnight

Additional file 5. Social media use by rare disease collaborative groups.

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Medical Research Council

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Collaborative groups Communication Northern Ireland Online Rare disease Semi-structured interview Social media Support Survey

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Additional file 5 of Improvements needed to support people living and working with a rare disease in Northern Ireland: current rare disease support perceived as inadequate

Funding

Medical Research Council

History

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