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Additional file 1 of Psychosocial burden and professional and social support in patients with hereditary transthyretin amyloidosis (ATTRv) and their relatives in Italy

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posted on 2021-04-08, 03:31 authored by Lorenza Magliano, Laura Obici, Claudia Sforzini, Anna Mazzeo, Massimo Russo, Francesco Cappelli, Silvia Fenu, Marco Luigetti, Matteo Tagliapietra, Chiara Gemelli, Luca Leonardi, Stefano Tozza, Luca Guglielmo Pradotto, Giulia Citarelli, Alessandro Mauro, Fiore Manganelli, Giovanni Antonini, Marina Grandis, Gian Maria Fabrizi, Mario Sabatelli, Davide Pareyson, Federico Perfetto, Giampaolo Merlini, Giuseppe Vita
Additional file 1. Table S1, entitled “Help in daily activities needed by the patients with ATTRv and provided by their relatives in the past two months”; Table S2, entitled “Practical and psychological burden experienced by patients with ATTRv (N=141) in the last two months”; Table S3, entitled “ Perceived support received from professionals and social network by patients with ATTRv (N=141)”; Table S4, entitled “Practical and psychological burden experienced by relatives of patients with ATTRv (N=69) in the last two months”; Table S5, entitled “Perceived support received from professionals and social network by relatives of patients with ATTRv (N=69)”.

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    Orphanet Journal of Rare Diseases

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