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Additional file 1 of Patients’ priorities and expectations on an EU registry for rare bone and mineral conditions

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posted on 2021-11-04, 04:56 authored by Muhammad Kassim Javaid, Marina Mordenti, Manila Boarini, Luca Sangiorgi, Ingunn Westerheim, Inês Alves, Rebecca Tvedt Skarberg, Natasha M. Appelman-Dijkstra, Corinna Grasemann
Additional file 1: English version of study.

Funding

NIHR Oxford Biomedical Research Centre ERN-2016 Framework Partnership Agreement

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    Orphanet Journal of Rare Diseases

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    Keywords

    Rare bone and mineral conditionsRare disease registriesOsteogenesis imperfectaSurveyNatural History

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    CC BY + CC0

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