Additional file 1 of How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study

Simpson, Amy; Bloom, Lara; Fulop, Naomi J.; Hudson, Emma; Leeson-Beevers, Kerry; Morris, Stephen; Ramsay, Angus I. G.; Sutcliffe, Alastair G.; Walton, Holly; Hunter, Amy

doi:10.6084/m9.figshare.13889491.v1

13023_2020_1664_MOESM1_ESM.docx (37.99 kB)

Additional file 1 of How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study

journal contribution

posted on 2021-02-11, 04:32 authored by Amy Simpson, Lara Bloom, Naomi J. Fulop, Emma Hudson, Kerry Leeson-Beevers, Stephen Morris, Angus I. G. Ramsay, Alastair G. Sutcliffe, Holly Walton, Amy Hunter

Additional file 1. Interview guide for patients and carers.

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Health Services and Delivery Research Programme

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Care coordination Financial impact Psychosocial impact Undiagnosed conditions Patient experience Carer experience Care coordinators Multi-disciplinary clinics Specialist care Care plans

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CC BY + CC0

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Additional file 1 of How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study

Funding

Health Services and Delivery Research Programme

History

Usage metrics

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Keywords

Licence

Exports