12878_2018_106_MOESM2_ESM.xlsx (12.66 kB)

Additional file 2: of Adapting medical guidelines to be patient-centered using a patient-driven process for individuals with sickle cell disease and their caregivers

dataset

posted on 2018-06-08, 05:00 authored by Robert Cronin, Tilicia Mayo-Gamble, Sarah-Jo Stimpson, Sherif Badawy, Lori Crosby, Jeannie Byrd, Emmanuel Volanakis, Adetola Kassim, Jean Raphael, Velma Murry, Michael DeBaun

List of questions asked at the community forums. These are the questions that were asked of participants at the community forums. (XLSX 12 kb)

Funding

Patient-Centered Outcomes Research Institute

History

Usage metrics

Read the peer-reviewed publication

Adapting medical guidelines to be patient-centered using a patient-driven process for individuals with sickle cell disease and their caregivers

BMC Hematology

Keywords

Sickle cell disease Clinical practice guidelines Patient-centered Community-engaged research Technology Patient decision making Qualitative methods

Licence

CC BY + CC0