Additional file 2: of Establishing core outcome sets for phenylketonuria (PKU) and medium-chain Acyl-CoA dehydrogenase (MCAD) deficiency in children: study protocol for systematic reviews and Delphi surveys
Beth Potter
Brian Hutton
Tammy Clifford
Nicole Pallone
Maureen Smith
Sylvia Stockler
Pranesh Chakraborty
Pauline Barbeau
Chantelle Garritty
Michael Pugliese
Alvi Rahman
Becky Skidmore
Laure Tessier
Kylie Tingley
Doug Coyle
Cheryl Greenberg
Lawrence Korngut
Alex MacKenzie
John Mitchell
Stuart Nicholls
Martin Offringa
Andreas Schulze
Monica Taljaard
10.6084/m9.figshare.5722177.v1
https://springernature.figshare.com/articles/journal_contribution/Additional_file_2_of_Establishing_core_outcome_sets_for_phenylketonuria_PKU_and_medium-chain_Acyl-CoA_dehydrogenase_MCAD_deficiency_in_children_study_protocol_for_systematic_reviews_and_Delphi_surveys/5722177
List of Research Ethics Board: Delphi surveys for families. (DOCX 16 kb)
2017-12-19 05:00:00
Inherited metabolic diseases
Core outcome set
Registry-based randomized trials
PKU
MCAD deficiency
Delphi